The FOP Multidisciplinary Network

Care for patients with fibrodysplasia ossificans progressiva (FOP) requires many medical specialties and a coordinated, multidisciplinary approach is essential for high-quality patient care.1

A patient’s multidisciplinary care network should be coordinated by their primary care physician (PCP).
The PCP is responsible for organizing a local team of specialists without expertise in FOP and consulting with FOP experts where necessary.1

This infographic explains the roles that different specialists play within the care network. The core care network consists of specialties that may see the patient on a regular basis, while the expanded care network are those that may be required on an ad hoc basis. Click on the specialists to learn more.

Note: This is not an exhaustive list. Some centers may have specialists not included here, and the expanded care network may vary for each individual due to their personal disease progression and needs at any given time.

*
* *

Emergency care
providers

Emergency care icon

Geneticists/
genetic counsellors

Geneticists icon

Mental health
counselors

Mental health icon

Dentists

Dentists icon

Rheumatologists

Rheumatologists icon

Endocrinologists

Endocrinologists icon

Patient/Caregiver

Patient/Caregiver icon
Arrows icon

Primary care
physician

Primary care icon

Orthopedists

Orthopedists icon
Palliative care icon

Pain and
palliative care
specialists

Pulmonologists

Pulmonologists icon
Cardiologists icon

Cardiologists

Audiologists icon

Audiologists/
otolarynologists

Occupational therapists icon

Occupational therapists

Anesthesiologists icon

Anesthesiologists

*